My name is Jacob Bottinger. I am raising funds to help find a cure for Congenital Muscular Dystrophy. I was born with this condition and my parents found out, with genetic testing, when I was three years old. With my condition, I have trouble learning. I love school, but sometimes things are hard for my brain to understand, as compared to my peers. There are things that are physically hard, but I keep pushing myself and always do my best. My condition is compared to people with ALS, just not as progressive. There are many kids like me who don't live too many years after birth, never have the ability to walk, talk or even ride a bike. I am lucky that my parents have given me the opportunity to go to therapy and are my advocates for me to receive the help that I need.
Currently there are 43 different types of Muscular Dystrophies. Mine is just one of many. I participate in clinical studies to help make progress to find a cure for my condition.
Every day, kids are born with muscular dystrophy and adults are diagnosed with ALS and other related diseases that take away their most basic freedoms – the freedom to walk, talk, hug and even breathe.
I’m participating in the MDA Virtual Muscle Walk on Labor Day weekend in Idaho to join MDA to find research breakthroughs across diseases, provide funds to make care for kids and adults available from day one, and empower families in hometowns across America with support to live longer and grow stronger.
Please make a donation to support me and the 100,000 kids and adults with muscle-debilitating diseases who will be served by MDA this year and years to come.