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My name is Jacob Bottinger. I am raising funds to help find a cure for Congenital Muscular Dystrophy. I was born with this condition and my parents found out, with genetic testing, when I was three years old. With my condition, I have trouble learning. I love school, but sometimes things are hard for my brain to understand, as compared to my peers. There are things that are physically hard, but I keep pushing myself and always do my best. My condition is compared to people with ALS, just not as progressive. I have trouble with daily tasks like, getting dressed, writing, speech, walking too far, and anything that involves my muscles. When I get sick, it takes longer to heal and recover. There are many kids like me who don't live too many years after birth, never have the ability to walk, talk or even ride a bike. I am lucky that my parents have given me the opportunity to go to therapy and are my advocates for me to recieve the help that I need.
Currently there are 42 different types of Muscular Dystrophies. Mine is just one of many. I participate in clinical studies to help make progress to find a cure for my condition. My family does fundraising to find a cure for me.
Every day, kids are born with muscular dystrophy and adults are diagnosed with ALS and other related diseases that take away their most basic freedoms – the freedom to walk, talk, hug and even breathe.
I’m participating in the MDA Muscle Walk on October 5, 2019, in Boise, Idaho to join MDA to find research breakthroughs across diseases, provide funds to make care for kids and adults available from day one, and empower families in hometowns across America with support to live longer and grow stronger.
Please make a donation to support me and the 100,000 kids and adults with muscle-debilitating diseases who will be served by MDA this year and years to come. We do fundraising all year long. Anytime is a good tie to raise funds.
Jacob Bottinger and Family